Special K: tomorrow she goes to UCSF for a second opinion on what exactly "in transit melanoma" means. She is seeing the best of the best, Dr. Mohammed Kashani, and we're happy she is getting the best treatment and care possible. Love, hugs, and good vibes to you Special K!
Jen: My new friend from DC who found me some how on the internet. She is on exactly the same path Francesca and I were on just a year ago. We have been emailing a bit and I am thankful she is there to remind me just how far I have come in only one year.
SS: Big and strong and through 9 of his 10 treatments. So proud of you, so inspired, and so looking forward to meeting you some day :) Until then, keep finding the fairways and greens. You're almost there!
I posted my marathon fund-raising link on Friday and emailed it out to my friends. I have received $900 already and in case you wonder what this money goes to, here are a few of the things that I did benefit from as a patient involved with the Leukemia & Lymphoma Society:
- First Connection: A peer to peer support program for patients and their families. This program provides an opportunity to share experiences with someone who has been successfully treated for the same diagnosis. Patients and caregivers learn coping skills and gain hope from trained volunteer survivors, who share their special perspective on the recovery process.
- Financial Aid:
The Leukemia & Lymphoma Society provides supplementary financial assistance to patients in significant financial need. Types of services covered by the Patient Financial Aid program: - Specific approved drugs related to the treatment/control of leukemia, Hodgkin and non-Hodgkin lymphoma and myeloma.
- Processing, typing, screening and cross-matching of blood components for transfusions; infusion of marrow, cord blood or stem cells.
- Transportation to and from a doctor's office, hospital, treatment center or Family Support Group.
- Initial induction x-ray therapy, x-ray therapy or other procedures according to the specific approval of the national Patient Services Committee.
So in case you are wondering just where your money is going, those are a few of the programs that made a difference in my life. Of course the bulk of the money raised goes to RESEARCH and this research has put drugs in the market that enabled me to become well enough to say the words "I AM A SURVIVOR."
Wednesday May 7th is my One Year Anniversary of being cancer free. It was the day of my first PET/CT Scan after starting chemotherapy and I was really only hoping to hear that significant progress had been made. I couldn't believe the magical words from Dr. Priya (super-woman) over the phone "Amy we've seen a complete response. You're in remission!"
I do have a check-up this month and the mind easily wanders back to THAT PLACE...but I'm feeling great and as always, hoping for nothing but the best news, the "no lumps no bumps" verdict would be nice.
Happy May everyone...hope it's sunny wherever you are. I'm closing with a recent photo of my hair progress. I have one more month of "dark Amy" as they refer to me at work (started Nike in November as a platinum blond) and then I have a new color palette and hair style launching on June 7th. Todd is ready to transform me...yet, again. It will be a long process, but so fun to have another new hair style! This photo is of me and Rosen - pre tequila madness - at Jillian's wedding in Cabo a few weeks ago. I don't have a ponytail but I do have bangs!
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